Bra Stories: Harper Wilde

Hi all!

I’ve been working super hard on this bra project to share with you all. A few months back, I asked on an Instagram story if lots of others with feeding tubes had struggles finding bras that sat high enough that it didn’t hurt the tube.

I took the opportunity to buy bras from lots and lots of companies to purchase the bras I found that I thought would work best for my tube situation, and hopefully others! I also will be sharing a general review of the bras for those without feeding tubes as well!

I’m typically a save the best for last type of lady, but this isn’t Skittles, so I’m jumping in with my top pick first! Because isn’t that what we all need anyway?! So to start us off, we are going to be chatting about Harper Wilde!

harper wilde3
Photo by the lovely Claudia Young

One of my favorite things is that they are pretty much the “Warby Parker of bras.” What does that mean? It means try ons with no financial commitment! Which is what I’m all about when it comes to bras. Continue reading “Bra Stories: Harper Wilde”

Tubie Pad Feature: Dorky Little Etsy Store

Hello! Long time no talk about Tubie Pads! I’m so sorry about the delay on those features. Today we will be talking about Dorky Little Etsy Store’s tubies!

Just as a reminder, here’s a breakdown of what I’ll be sharing!

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of the maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week I’ll be sharing and will be hearing from, Mistie of Washington state, who started Dorky Little Etsy Store! She sent me some super cute tubies in lots of cute patterns (on front AND back!) untitled shoot0690Web

My Thoughts

I have really enjoyed these tubies! They are made with so much love and care, and with the main intention of helping people in the feeding tube community, which I absolutely adore. Mistie acknowledges the struggle of those of us on a disability fixed income, because she too deals with living on a fixed income. So she makes them with that in mind and prices them accordingly as well.

They launder nicely because they are cotton and very durable in the wash (in a laundry bag of course!)

These would be a go to if I was not having a lot of drainage, they don’t seem to absorb as much as some of the others that are a bit thicker. But there are definitely days when I do not need a thicker tubie!

They’re simple, sweet, well made, and I absolutely love that there is a patterned backing, I love details like that! Continue reading “Tubie Pad Feature: Dorky Little Etsy Store”

Non-Mint Toothpaste Reviews

Hi! Several months ago I did a poll on Instagram asking if any others had issues with mint flavored toothpastes. Whether it be a taste preference, allergy, causing them to feel nauseous, and anything in between.

I’ve hated mint flavored toothpaste since I was a tiny child. I remember closing the bathroom door, running the water over my toothbrush and splashing water around to make it sound like I was brushing my teeth before going to school. Feeling pretty sorry for those who had to endure that breath… But listen, it made me wanna throw right up. The flavor and scent of mint makes me cringe, even at the thought of it.

Hence why I was a-ok to volunteer myself to test some other options available. Unfortunately there aren’t a ton. But I’ve rounded up five that I’d love to share with you today! These are in no particular order.

Let’s start with Colgate’s Strawberry Smash!jen day09887WebYes, this is intended for the younger crowd, but I pinky swear you that when I asked my dentist if she had any ideas for non-mint toothpastes, she suggested this one. And she also told me she uses it herself. So I felt okay including it here!

Taste: Sweet and artificial strawberry flavored candy-like. (I’m very into this.)

Texture: More gel-like than paste-like!

Convenience factor: Super easy! I bought this at Walmart, and could probably find it at most grocery stores.

How clean does it make my mouth feel: 3/5 stars

I like the flavor, and it doesn’t make me gag. So I give it 4/5 stars!

Here’s a link to Walmart’s listing for two 4.6 oz tubes for $7.32!

Next up, Schmidt’s Vanilla Chai Tooth+Mouth Paste! Continue reading “Non-Mint Toothpaste Reviews”

My Story: From the Oley Regional Conference in Dallas, Texas

Hi everyone!

I hope that you enjoyed the week of Feeding Tube Awareness that I shared on a couple weeks ago. Sorry for the lack of post last week! I was gearing up for the Oley conference in Dallas that I had the honor of sharing my story at last Saturday!

I wanted to come here to share a bit on that and give those who didn’t get a chance to attend, the opportunity to watch the recording of my talk if they wanted to, which you’ll find below!

First of all, I got to reconnect with my sweet pediatric GI doctor! It was a total surprise until I asked a friend if he knew of any Dallas Children’s Hospital doctors, then he told me mine was going to be there the very next day! Was an absolute joy to see her after all these years!Dr. C

I also got to see my precious friend, Stephanie from Washington state! I missed her so! We get to see one another about once a year at conferences, but it feels like we never go very long without seeing one another cause we are definitely phone best pals all the days of the year! steph

And then we both stayed with the amazing Nurse Pat! It was truly a week with some of my most favorite humans. Dang, I wish I’d gotten a photo with everyone at the conference!nurse pat

It was a great weekend, and I got to meet lots of fun new friends too!

Now for the “Consumer Story” talk I did on the morning of the conference!

Unfortunately, I do not have very stellar video editing skills, and it’s just off of my iPhone, so it’s not a very exciting looking video (though I did somehow manage to make it have a cute thumbnail which was a new thing I learned!) I’ll also share the slides I was going through just as part of this blog post, so you’ll have to flip through as you listen to the audio if you want to! Maybe one day I’ll learn some video editing, who knows! But for now, here’s what I’ve got!

p.s. I whisper at the very beginning, but don’t worry, I don’t whisper the entire time, ha!

Here’s the slides if you’d like to follow along! (It’s going to probably go way faster than I’m talking.. So press pause if you want to!)

This slideshow requires JavaScript.

That’s a wrap! I hope you enjoyed it. I really didn’t expect as many tears as there were, but that’s okay. I’m all about being real about those emotions, but sometimes forget to give myself that freedom.

Thanks so much for hanging out here! ❤

Feeding Tube Awareness Week Features-Mellie+Allie+Kate

Hello! Happy last day of Feeding Tube Awareness Week! We are finishing off this week with three lovely tubie ladies who have shared amazing insights into their lives as humans with feeding tubes! Let’s not waste any time, welcome Miss Millie! You can find her on Instagram @thegirlwhocanteat where she shares more of her adventure!10

Q: What diagnosis led to you needing a feeding tube?

A: Gastroparesis

Q: How long have you been on tube feeds?

A: Around 5 years in total, I had to be on TPN for 2 years and even though at times it is a struggle with pain from the J feeds, I would much rather be a little more uncomfortable than to have to worry about infection constantly.

Q: What type of tube do you have?

A: I have a straight J-tube and also a G-tube that allows me to decompress air, etc.

Q: What would you love to share with someone new to tube feeding?

A: That no matter how hard things may be, remember the importance of your feeding-tube, being different isn’t bad. Continue reading “Feeding Tube Awareness Week Features-Mellie+Allie+Kate”