Bra Review: Lively

Hello! Long time no see!

Did you know it’s National Underwear Day!? That’s why I’m here, to share more undies with you, ha! Another bra review coming your way!

Honestly, I’ve been hiding out from this space because I’ve been working on something bigger and better (Shhhh! It’s still a secret!) But I decided to break my silence with another review for you in honor of the big day!

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Yikes. The fit on that one. WOOF.

You’ve seen their advertisements all over the dang place, Instagram, Facebook, heck, they’ve probably somehow implanted their gorgeous advertising into your brain somehow.

But I’m here to tell you I’m unfortunately not a fan after the products I tried of theirs. Who am I talking about? You guessed it, Lively, of wearlively.com. The ones with the really super Insta-perfect photos, seemingly great quality and promote that they’re able to help all women’s boobies be happy. I was super convinced that their bras were going to be my winner. I was sadly disappointed. Continue reading “Bra Review: Lively”

Bra Review: Negative Underwear

Listen, I’ve been agonizing over posting this review for weeks now. Guess why? It’s a mesh and see-through bra.

It’s got me thinking, do celebrities and models agonize over showing their bodies too? Is it just me? I’m not really sure. But there’s also something really liberating about it, and I’m hopeful will help you feel some body freedom too.

What I’ve done here, is placed photos of me in the bra (with censored stickers) below the “read more” line, so if you are not comfortable seeing those photos, please do not expand this post.

Now, the bra! I freaking love this bra. Truly.negative1

It’s the Sieve Non-Wire Bra in Buff (they have it in Peach and Black as well) from Negative Underwear.

(WARNING! This is the place where you don’t want to click if you don’t want to see this bra on me!) Continue reading “Bra Review: Negative Underwear”

Tubie Pad Feature: Dorky Little Etsy Store

Hello! Long time no talk about Tubie Pads! I’m so sorry about the delay on those features. Today we will be talking about Dorky Little Etsy Store’s tubies!

Just as a reminder, here’s a breakdown of what I’ll be sharing!

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of the maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week I’ll be sharing and will be hearing from, Mistie of Washington state, who started Dorky Little Etsy Store! She sent me some super cute tubies in lots of cute patterns (on front AND back!) untitled shoot0690Web

My Thoughts

I have really enjoyed these tubies! They are made with so much love and care, and with the main intention of helping people in the feeding tube community, which I absolutely adore. Mistie acknowledges the struggle of those of us on a disability fixed income, because she too deals with living on a fixed income. So she makes them with that in mind and prices them accordingly as well.

They launder nicely because they are cotton and very durable in the wash (in a laundry bag of course!)

These would be a go to if I was not having a lot of drainage, they don’t seem to absorb as much as some of the others that are a bit thicker. But there are definitely days when I do not need a thicker tubie!

They’re simple, sweet, well made, and I absolutely love that there is a patterned backing, I love details like that! Continue reading “Tubie Pad Feature: Dorky Little Etsy Store”

Share Your Rare: Rare Disease Day 2019

Hi all! It’s Rare Disease Day! A day where the rare disease community gathers and shares their stories, raises awareness, and maybe even paints their faces! I’ve gathered some answers from five of my rare disease friends. They all have very different diseases, but all require, or have required, TPN currently or at some point along their journey.

I’m excited to share a little snapshot into their lives, so let’s get to it!

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Q: What is your rare disease?

A: A myriad of multiple complex chronic illnesses involving Ehlers Danlos Syndrome (TNXB mutation), Factor V deficiency, autoimmune and connective tissue disease, Chronic Intestinal Pseudo Obstruction, and Gastroparesis.

Q: Can you give us a super short description of what this disease is?

A: These diseases impact every organ system in my body. The most severe complications have been periods of intestinal failure due to Chronic Intestinal Pseudo Obstruction; where my intestines do not absorb nutrients and cannot handle fluid or food moving through them. I had to have an ileostomy placed; which means my colon is unhooked and I have a bag where my small intestine empties its contents into. I have a central line where I have received my nutrition and fluids for three years. My joints dislocate frequently, my skin tears easily, and I have struggles with wound healing due to my EDS. I have autonomic dysfunction, which means that my body cannot regulate basic functions such as heart rate, blood pressure, temperature, and more. Continue reading “Share Your Rare: Rare Disease Day 2019”

Feeding Tube Awareness Week Features-Mellie+Allie+Kate

Hello! Happy last day of Feeding Tube Awareness Week! We are finishing off this week with three lovely tubie ladies who have shared amazing insights into their lives as humans with feeding tubes! Let’s not waste any time, welcome Miss Millie! You can find her on Instagram @thegirlwhocanteat where she shares more of her adventure!10

Q: What diagnosis led to you needing a feeding tube?

A: Gastroparesis

Q: How long have you been on tube feeds?

A: Around 5 years in total, I had to be on TPN for 2 years and even though at times it is a struggle with pain from the J feeds, I would much rather be a little more uncomfortable than to have to worry about infection constantly.

Q: What type of tube do you have?

A: I have a straight J-tube and also a G-tube that allows me to decompress air, etc.

Q: What would you love to share with someone new to tube feeding?

A: That no matter how hard things may be, remember the importance of your feeding-tube, being different isn’t bad. Continue reading “Feeding Tube Awareness Week Features-Mellie+Allie+Kate”