My Story Part Seventeen: The one where I meet Anthony <3

Welcome back!  This is the second to last part of this story.  Thanks so much for sticking around for it!  I’m curious, what would you like to see me write next?  While I have ideas, I am ultimately here in hopes of helping others.  Are you currently having issues with how to tape your feeding tube and looking for a possible new way?  Are you scheduled for a procedure in the hospital and want a list of ideas for things to take with you to make it feel more like home?  Or maybe you aren’t a patient and have a question about something I’ve already mentioned here and would like for me to elaborate on it?  I’d love to hear from you!

Let’s jump back in!

The second trip to Mayo Clinic was just as busy as the first!  There were lots of lab draws and running around to see various doctors, but Aunt Retta and I had fun with it!

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We found a fun restaurant and I won a pizza or something! I mostly just really like this photo.

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My Story Part Sixteen: The one where the J-tube doesn’t work as planned

Welcome back!  Alright, so the J-tube is placed!  What else could ever go wrong?

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I’d made it home in time from Mayo Clinic to stand by Tiffany’s side in her beautiful wedding! Photo by Cassie Loree

While getting used to my new normal with my J-tube, I had a lot of trouble.  It was great in the sense that it helped my tummy stay a little flatter than it had been and it made it to where I was able to eat a pretty full liquid and soft food diet without too much trouble.  But it was so hard to learn how to tape it just right so it didn’t hurt and to find cute clothes that were comfortable and didn’t make it obvious that it was there.

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I spent a lot of my free time crafting! I made this birdie cake topper for Tiffany’s wedding! Photo by Cassie Loree

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My Story Part Fifteen: The one where we went to Mayo Clinic

Hey everyone! Welcome back to the story right after I got back home from over two months in California!

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Getting to see my sweet friends back home was the best!

Getting home was going pretty great!  I had developed a new method to help myself feel more human – I called it “chewing and spitting.”  As gross and weird as this may sound, eating is such a huge part of the human experience (just try watching television for a short time without watching commercials related to food or drink).  My doctors have always agreed and cheered me on when I have found unconventional ways to feel as human as possible.

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Got to go to my sweet friend, Tiffany’s bridal shower as her Maid of Honor!

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