Feeding Tube Awareness Week Features-Mellie+Allie+Kate

Hello! Happy last day of Feeding Tube Awareness Week! We are finishing off this week with three lovely tubie ladies who have shared amazing insights into their lives as humans with feeding tubes! Let’s not waste any time, welcome Miss Millie! You can find her on Instagram @thegirlwhocanteat where she shares more of her adventure!10

Q: What diagnosis led to you needing a feeding tube?

A: Gastroparesis

Q: How long have you been on tube feeds?

A: Around 5 years in total, I had to be on TPN for 2 years and even though at times it is a struggle with pain from the J feeds, I would much rather be a little more uncomfortable than to have to worry about infection constantly.

Q: What type of tube do you have?

A: I have a straight J-tube and also a G-tube that allows me to decompress air, etc.

Q: What would you love to share with someone new to tube feeding?

A: That no matter how hard things may be, remember the importance of your feeding-tube, being different isn’t bad. Continue reading “Feeding Tube Awareness Week Features-Mellie+Allie+Kate”

Feeding Tube Awareness Week Feature-Ally+Breanne+Mandi

Day three of spreading some Feeding Tube Awareness up in here! Let’s jump to it, as we have three precious humans to hear from today! First up, Ally! You can find her on Instagram @myhealthquirks!5

Q: What diagnosis led you to needing a feeding tube?

A: Gastroparesis due to Elher’s Danlos Syndrome

Q: How long have you had your tube/been tube fed?

A: 3 months Continue reading “Feeding Tube Awareness Week Feature-Ally+Breanne+Mandi”

Feeding Tube Awareness Week Feature-Rose+Sam+Ansley

Welcome back! Let’s dive right back in with day two of Feeding Tube Awareness week with my friend Rose! You can find her on Instagram @my.eds!14

Q: What diagnosis that led you to needing a feeding tube?

A: Gastoparesis, ntestinal dysmotility, MALS

Q: How long have you had your tubes?

A: Six months.

Q: What type of tube do you have?

A: An NJ tube and an NG tube.

Q: What would you love to share with someone new to tube feeding?

A: If tube feeds work for you it can be a complete life changer! It seems scary but if it can drastically improve your life try to be open to it. Continue reading “Feeding Tube Awareness Week Feature-Rose+Sam+Ansley”

Feeding Tube Awareness Week Feature-Liz+Lauren+Cat

Welcome to Feeding Tube Awareness Week-Pretty Couch Potato Style! Over the course of this week, I’ll be sharing fifteen of my tubie friends’ stories.

The range stories are all very different from each person. Some have been on tube feeds for nearly their entire lives, some just started on tube feeds, and some don’t even use their feeding tubes for feeding (HAYYYY, das me!)

Let’s start here with my friend Liz! You can find her on Instagram @liz_81712!1

Q: What diagnosis led to you needing a feeding tube?

A: The underlying diagnosis that caused me to require tube feeding is mitochondrial disease.

Q: How many years have you had a tube or been on tube feeds?

A: I have relied on tube feeds as 100% of my nutrition for 19 years now, since I was 18 months old. Anything I’ve been able to have orally has merely been for pleasure. Continue reading “Feeding Tube Awareness Week Feature-Liz+Lauren+Cat”

Tubie Pad Feature: Bella Madalyn

Hi friends!

I am so excited to be back with another Tubie Pad Maker Feature this week!With Carrie0751Web

Just as a reminder, here’s a breakdown of what I’ll be sharing!

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of the maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week I’ll be sharing and will be hearing from my new friend, Kaitlin Metheny of Tennessee, who started Bella Madalyn! She sent me some super precious floral tubie pads! Look how cute! And she picked them out herself! IMG_4489 Continue reading “Tubie Pad Feature: Bella Madalyn”