Why “We Need to Pull Your Line” Isn’t as Easy as it Sounds

I’ll warn you, this is going to be a long post (I know I’m long winded anyway!) But it’s important. It’s about advocating for yourself as a patient when a medical professional states they’d like to do something that you don’t feel comfortable with. It’s also about taking your central line, and the symptoms of possible line infection, very seriously.With Carrie0930Web Continue reading “Why “We Need to Pull Your Line” Isn’t as Easy as it Sounds”

My Hospital Bag!

My hospital visits are usually quite lengthly and full of waiting on my guts to work.  I’m sure some of these ideas won’t work for all circumstances, but perhaps a couple will make you think, “Man! That’s definitely going along for my next trip!”  My hope is that some of these things will help make your hospital stays lots comfier and feel a little bit more like home.  Some of them might even seem ridiculous, but when you’re feeling crummy and unable to even be in your own home, you’ve got to do what you’ve got to do!

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  • Good bath towel — Because those hospital towels don’t cover a fly, and they’re rough as heck.  Showering isn’t something that I get to do all that often when I’m in the hospital.  But when the day rolls around that I get to, I want a GOOD shower.  That also involves feeling great after the shower!  A soft plushy towel is vital to making your showers at the hospital feel a little more like home!
  • Hairdryer — Because you’re going to be cold when you get out of said shower, and wet hair doesn’t help when you’re cold!  Burr!  Some hospitals have a hairdryer or two on each floor, so it’s always worth asking for one if you forget.  But I never count on that being the case!

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My Story Part Sixteen: The one where the J-tube doesn’t work as planned

Welcome back!  Alright, so the J-tube is placed!  What else could ever go wrong?

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I’d made it home in time from Mayo Clinic to stand by Tiffany’s side in her beautiful wedding! Photo by Cassie Loree

While getting used to my new normal with my J-tube, I had a lot of trouble.  It was great in the sense that it helped my tummy stay a little flatter than it had been and it made it to where I was able to eat a pretty full liquid and soft food diet without too much trouble.  But it was so hard to learn how to tape it just right so it didn’t hurt and to find cute clothes that were comfortable and didn’t make it obvious that it was there.

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I spent a lot of my free time crafting! I made this birdie cake topper for Tiffany’s wedding! Photo by Cassie Loree

Continue reading “My Story Part Sixteen: The one where the J-tube doesn’t work as planned”

My Story Part Fifteen: The one where we went to Mayo Clinic

Hey everyone! Welcome back to the story right after I got back home from over two months in California!

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Getting to see my sweet friends back home was the best!

Getting home was going pretty great!  I had developed a new method to help myself feel more human – I called it “chewing and spitting.”  As gross and weird as this may sound, eating is such a huge part of the human experience (just try watching television for a short time without watching commercials related to food or drink).  My doctors have always agreed and cheered me on when I have found unconventional ways to feel as human as possible.

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Got to go to my sweet friend, Tiffany’s bridal shower as her Maid of Honor!

Continue reading “My Story Part Fifteen: The one where we went to Mayo Clinic”

My Story Part Fourteen: The one where I ended up back at UCSD

Welcome back!  Anthony and I only had a 21 hour day yesterday!  With flight delays and all kinds of stuff, we didn’t end up getting home to Fayetteville until about 1:00 AM!  Is this time change messing with anyone else?  Also, as I’m starting to realize how long this story is (how in the world are we already up to Part 14!?)  I’m thinking I might start sprinkling in some other posts, just for fun!  What do you guys think?

As for today, we’ll continue with this story!

Four days of being home, eating, doing life and feeling pretty decent went by.  Then, I had my first bad night.  It might have been a combination of me “over-doing it,” and eating too much – I couldn’t tell you exactly what triggered it.  But I had my first bad night outside of the hospital. Four days was a pretty good run at it though!

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Cute little succulents I’d gotten from the nursery.

Continue reading “My Story Part Fourteen: The one where I ended up back at UCSD”