Welcome to Feeding Tube Awareness Week-Pretty Couch Potato Style! Over the course of this week, I’ll be sharing fifteen of my tubie friends’ stories.
The range stories are all very different from each person. Some have been on tube feeds for nearly their entire lives, some just started on tube feeds, and some don’t even use their feeding tubes for feeding (HAYYYY, das me!)
Let’s start here with my friend Liz! You can find her on Instagram @liz_81712!
Q: What diagnosis led to you needing a feeding tube?
A: The underlying diagnosis that caused me to require tube feeding is mitochondrial disease.
Q: How many years have you had a tube or been on tube feeds?
I am so excited to be back with another Tubie Pad Maker Feature this week!
Just as a reminder, here’s a breakdown of what I’ll be sharing!
My personal thoughts on the maker’s Tubie Pads.
A bit of the maker’s story.
The materials they use and special features that sets each of them apart to help you find the right fit for you.
Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
Price and where to find the Tubie Pads.
Lots of other nuggets of info depending on what each maker chooses to share!
This week I’ll be sharing and will be hearing from my new friend, Kaitlin Metheny of Tennessee, who started Bella Madalyn! She sent me some super precious floral tubie pads! Look how cute! And she picked them out herself! Continue reading “Tubie Pad Feature: Bella Madalyn”→
Hi everyone! This is the last post of this “My Story” series. Thank you all for your support in my telling of this story, it means the world to me. I know it’s hard with this being a chronological story and a blog posting it backwards. But I’ve made a list of links on this page and this page that will help guide you through them in the correct order!
I am so excited to get to this part of the story! This is where things finally start to look up and it makes me so happy.
Just a recap, I’m still hanging out in the hospital from the same visit as the end of Part 17!
After being in and out of the hospital and getting tube after tube shoved down my nose to drain my stomach, we all knew something had to give. One morning, my doctor came in and asked what I thought about having a draining G-tube placed. She knew that had been the initial plan at Mayo Clinic and that it didn’t end up working out due to my anatomy, but she was thinking about asking a surgeon if he would be so kind to place it for me. Continue reading “My Story Part Eighteen: The one where I get my life changing G-tube”→