Good ol’ Sacramento

Hey you guys!  Anthony and I were invited to go out to Sacramento to attend a focus group and a half day seminar, we had such a fabulous time!  I’m so excited to share our experience here with you today!

The time we spent getting there and getting home held some of the most intense action (not in a great way, ha!) so I’ll start with a (now) funny tale from our journey out there!

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So on our way out on Thursday, we were going to be on a small plane on the first leg of our flight.  You know how that goes, right?  They always call out that they’ll, “check your bag at no charge to get to your final destination.”  I always jump at this opportunity, because I HATE having to tote my bag around.  So we went ahead and took them up to the desk.  The gal asked quickly, ‘any blah, blah, lithium batteries, blah, blahs in either of these?’  My blah’s are not used in a mocking notion, just to emphasize the size of the list!

I ran through my bag in my brain, and didn’t believe I had any guns or any of the other items, so off they went!

Well surprise, this was the first time I’d traveled with my camera.  On the plane while we were in the air, I leaned over to Anthony and asked, “Um babe, are camera batteries lithium batteries?” Continue reading “Good ol’ Sacramento”

My Story Part Eighteen: The one where I get my life changing G-tube

Hi everyone!  This is the last post of this “My Story” series.  Thank you all for your support in my telling of this story, it means the world to me.  I know it’s hard with this being a chronological story and a blog posting it backwards.  But I’ve made a list of links on this page and this page that will help guide you through them in the correct order!

I am so excited to get to this part of the story!  This is where things finally start to look up and it makes me so happy.

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This obviously isn’t me in the hospital! Just me being happy! (Wouldn’t it be amazing if hospitals were as cute as this place though?!)

Just a recap, I’m still hanging out in the hospital from the same visit as the end of Part 17!

After being in and out of the hospital and getting tube after tube shoved down my nose to drain my stomach, we all knew something had to give.  One morning, my doctor came in and asked what I thought about having a draining G-tube placed.  She knew that had been the initial plan at Mayo Clinic and that it didn’t end up working out due to my anatomy, but she was thinking about asking a surgeon if he would be so kind to place it for me. Continue reading “My Story Part Eighteen: The one where I get my life changing G-tube”

My Story Part Seventeen: The one where I meet Anthony <3

Welcome back!  This is the second to last part of this story.  Thanks so much for sticking around for it!  I’m curious, what would you like to see me write next?  While I have ideas, I am ultimately here in hopes of helping others.  Are you currently having issues with how to tape your feeding tube and looking for a possible new way?  Are you scheduled for a procedure in the hospital and want a list of ideas for things to take with you to make it feel more like home?  Or maybe you aren’t a patient and have a question about something I’ve already mentioned here and would like for me to elaborate on it?  I’d love to hear from you!

Let’s jump back in!

The second trip to Mayo Clinic was just as busy as the first!  There were lots of lab draws and running around to see various doctors, but Aunt Retta and I had fun with it!

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We found a fun restaurant and I won a pizza or something! I mostly just really like this photo.

Continue reading “My Story Part Seventeen: The one where I meet Anthony <3”

My Story Part Sixteen: The one where the J-tube doesn’t work as planned

Welcome back!  Alright, so the J-tube is placed!  What else could ever go wrong?

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I’d made it home in time from Mayo Clinic to stand by Tiffany’s side in her beautiful wedding! Photo by Cassie Loree

While getting used to my new normal with my J-tube, I had a lot of trouble.  It was great in the sense that it helped my tummy stay a little flatter than it had been and it made it to where I was able to eat a pretty full liquid and soft food diet without too much trouble.  But it was so hard to learn how to tape it just right so it didn’t hurt and to find cute clothes that were comfortable and didn’t make it obvious that it was there.

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I spent a lot of my free time crafting! I made this birdie cake topper for Tiffany’s wedding! Photo by Cassie Loree

Continue reading “My Story Part Sixteen: The one where the J-tube doesn’t work as planned”

My Story Part Fifteen: The one where we went to Mayo Clinic

Hey everyone! Welcome back to the story right after I got back home from over two months in California!

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Getting to see my sweet friends back home was the best!

Getting home was going pretty great!  I had developed a new method to help myself feel more human – I called it “chewing and spitting.”  As gross and weird as this may sound, eating is such a huge part of the human experience (just try watching television for a short time without watching commercials related to food or drink).  My doctors have always agreed and cheered me on when I have found unconventional ways to feel as human as possible.

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Got to go to my sweet friend, Tiffany’s bridal shower as her Maid of Honor!

Continue reading “My Story Part Fifteen: The one where we went to Mayo Clinic”