Bra Stories: Aerie

Welcome back for week two of the bra stories series, where I’m sharing what I learned and thought about several bra companies bras when I tested them out over the past couple of months!

I’ll talk about several things:

  • Ease of purchase.
  • Comfort and fit in general.
  • How they felt in relation to my feeding tube that hits very closely to my bra band.
  • General Quality.
  • Return/exchange process.
  • Overall personal experience with the product.

This week, let’s talk about Aerie, the lingerie store that is owned by American Eagle Outfitters. They’re often praised for their use of unedited photos, and using nontraditional models, which is amazing and I love those things about this company!

I had lots of hope for these being some real winners (honestly I felt that with each brand, because I truly feel they’re doing good work.) But in reality, it didn’t pan out so awesome for me with the ones I tried. Let’s dive in!

I tried on three different wireless styles:

  1. The Real Sunnie Wireless Push Up Bra – in two sizesbrareview-6
  2. The Real Happy Wireless Lightly Lined Brabrareview-9
  3. The Real Sunnie Wireless Lightly Lined Brabrareview-12

Continue reading “Bra Stories: Aerie”

Bra Stories: Harper Wilde

Hi all!

I’ve been working super hard on this bra project to share with you all. A few months back, I asked on an Instagram story if lots of others with feeding tubes had struggles finding bras that sat high enough that it didn’t hurt the tube.

I took the opportunity to buy bras from lots and lots of companies to purchase the bras I found that I thought would work best for my tube situation, and hopefully others! I also will be sharing a general review of the bras for those without feeding tubes as well!

I’m typically a save the best for last type of lady, but this isn’t Skittles, so I’m jumping in with my top pick first! Because isn’t that what we all need anyway?! So to start us off, we are going to be chatting about Harper Wilde!

harper wilde3
Photo by the lovely Claudia Young

One of my favorite things is that they are pretty much the “Warby Parker of bras.” What does that mean? It means try ons with no financial commitment! Which is what I’m all about when it comes to bras. Continue reading “Bra Stories: Harper Wilde”

Tubie Pad Feature: Dorky Little Etsy Store

Hello! Long time no talk about Tubie Pads! I’m so sorry about the delay on those features. Today we will be talking about Dorky Little Etsy Store’s tubies!

Just as a reminder, here’s a breakdown of what I’ll be sharing!

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of the maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week I’ll be sharing and will be hearing from, Mistie of Washington state, who started Dorky Little Etsy Store! She sent me some super cute tubies in lots of cute patterns (on front AND back!) untitled shoot0690Web

My Thoughts

I have really enjoyed these tubies! They are made with so much love and care, and with the main intention of helping people in the feeding tube community, which I absolutely adore. Mistie acknowledges the struggle of those of us on a disability fixed income, because she too deals with living on a fixed income. So she makes them with that in mind and prices them accordingly as well.

They launder nicely because they are cotton and very durable in the wash (in a laundry bag of course!)

These would be a go to if I was not having a lot of drainage, they don’t seem to absorb as much as some of the others that are a bit thicker. But there are definitely days when I do not need a thicker tubie!

They’re simple, sweet, well made, and I absolutely love that there is a patterned backing, I love details like that! Continue reading “Tubie Pad Feature: Dorky Little Etsy Store”

Feeding Tube Awareness Week Features-Mellie+Allie+Kate

Hello! Happy last day of Feeding Tube Awareness Week! We are finishing off this week with three lovely tubie ladies who have shared amazing insights into their lives as humans with feeding tubes! Let’s not waste any time, welcome Miss Millie! You can find her on Instagram @thegirlwhocanteat where she shares more of her adventure!10

Q: What diagnosis led to you needing a feeding tube?

A: Gastroparesis

Q: How long have you been on tube feeds?

A: Around 5 years in total, I had to be on TPN for 2 years and even though at times it is a struggle with pain from the J feeds, I would much rather be a little more uncomfortable than to have to worry about infection constantly.

Q: What type of tube do you have?

A: I have a straight J-tube and also a G-tube that allows me to decompress air, etc.

Q: What would you love to share with someone new to tube feeding?

A: That no matter how hard things may be, remember the importance of your feeding-tube, being different isn’t bad. Continue reading “Feeding Tube Awareness Week Features-Mellie+Allie+Kate”

Feeding Tube Awareness Week Feature-Sara+Montana+Sarah

Hello! Welcome to day 4 of Feeding Tube Awareness Week! Feel like you’ve heard it all? Well I’ve got news for you! There’s always more to learn from each different tubie. We’ve all had such different experiences, even if they are the same medical device!

Today we start off with my friend Sara Grace! She has had a very different experience with feeding tubes, her’s did not go well and ended up failing. I love hearing her perspective so much. You can find her on Instagram @chronic_sgb!sara g!.png

Q: What diagnosis led to you needing a feeding tube?

A: hEDS, rumination and gastroparesis

Q: How long have you been tube fed?

A: J-tube duration was 2 months, TPN duration 8 months

Q: What type of tube did you have?

A: J-tube (long)

Q: What would you love to share with someone new to tube feeding?

A: Please listen to your body! Doctors may tell you that chronic debilitating site and muscle pain is normal for tube healing, but if the pain increases or doesn’t go away, tubes were not meant for you! (And that’s okay and NOT YOUR FAULT)

Q: How has your feeding tube helped to improve your life?

A: My feeding tube was supposed to be my saving grace, but instead it caused months of traumatizing and debilitating pain that has left me with scar tissue and ended up decreasing my motility further.

Q: What is a complication you’ve had that you never expected to happen with your tube?

I went to the Mayo clinic to have my feeding tube placed by the best, and none of the GI doctors on my team were aware of the potential complications that come from placing tubes in hEDS patients.  Having finally found a GI doc that specializes in EDS based gastroparesis, he was able to explain why it was that my tube failed.  After a barium swallow to confirm, he found that (due to EDS) my intestinal tract crumples at the bottom of my pelvis instead of staying in place when I sit/stand up or walk around.  This made my tube placement incredibly painful, as it was pinning my small bowel to my skin and just hanging there. Continue reading “Feeding Tube Awareness Week Feature-Sara+Montana+Sarah”