My Story: From the Oley Regional Conference in Dallas, Texas

Hi everyone!

I hope that you enjoyed the week of Feeding Tube Awareness that I shared on a couple weeks ago. Sorry for the lack of post last week! I was gearing up for the Oley conference in Dallas that I had the honor of sharing my story at last Saturday!

I wanted to come here to share a bit on that and give those who didn’t get a chance to attend, the opportunity to watch the recording of my talk if they wanted to, which you’ll find below!

First of all, I got to reconnect with my sweet pediatric GI doctor! It was a total surprise until I asked a friend if he knew of any Dallas Children’s Hospital doctors, then he told me mine was going to be there the very next day! Was an absolute joy to see her after all these years!Dr. C

I also got to see my precious friend, Stephanie from Washington state! I missed her so! We get to see one another about once a year at conferences, but it feels like we never go very long without seeing one another cause we are definitely phone best pals all the days of the year! steph

And then we both stayed with the amazing Nurse Pat! It was truly a week with some of my most favorite humans. Dang, I wish I’d gotten a photo with everyone at the conference!nurse pat

It was a great weekend, and I got to meet lots of fun new friends too!

Now for the “Consumer Story” talk I did on the morning of the conference!

Unfortunately, I do not have very stellar video editing skills, and it’s just off of my iPhone, so it’s not a very exciting looking video (though I did somehow manage to make it have a cute thumbnail which was a new thing I learned!) I’ll also share the slides I was going through just as part of this blog post, so you’ll have to flip through as you listen to the audio if you want to! Maybe one day I’ll learn some video editing, who knows! But for now, here’s what I’ve got!

p.s. I whisper at the very beginning, but don’t worry, I don’t whisper the entire time, ha!

Here’s the slides if you’d like to follow along! (It’s going to probably go way faster than I’m talking.. So press pause if you want to!)

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That’s a wrap! I hope you enjoyed it. I really didn’t expect as many tears as there were, but that’s okay. I’m all about being real about those emotions, but sometimes forget to give myself that freedom.

Thanks so much for hanging out here! ❤

Photographing a Wedding & A Thank You to My Body

Hi! I wanted to take a quick break from Tubie Pad Features this week to share about a really cool thing my body helped me do a couple weekends ago! I got to photograph a wedding!Thompson Wedding-Paul8701Web

My friend Paul, who was my teammate in capturing this wedding, was really kind and took some shots of me (or shots I was accidentally in, ha!) so I thought I’d share those throughout this post, along with some of the photos I captured from the wedding day at the end!Thompson Wedding-Paul9534Web

If you know much about weddings, you know they’re pretty stressful. Add in being the photographer of a wedding, I’ll just be honest and say the stress is very high. Being all places at once, making sure to get all of the very important moments (which is honestly all of them, ha!) and just the general stress on your body to run around for an entire day, it’s a lot! Continue reading “Photographing a Wedding & A Thank You to My Body”

Tubie Pad Feature: Bella Madalyn

Hi friends!

I am so excited to be back with another Tubie Pad Maker Feature this week!With Carrie0751Web

Just as a reminder, here’s a breakdown of what I’ll be sharing!

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of the maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week I’ll be sharing and will be hearing from my new friend, Kaitlin Metheny of Tennessee, who started Bella Madalyn! She sent me some super precious floral tubie pads! Look how cute! And she picked them out herself! IMG_4489 Continue reading “Tubie Pad Feature: Bella Madalyn”

Tubie Pad Feature : Turkey Tot Customs

With Carrie0762WebI’ve been working to put together a guide to Tubie Pads!  After years of feeling lost in the Tubie Pad world, I finally decided to jump in and bring you along with me!  I’ve gathered pads from several makers.  I’ll be sharing several things about each maker’s Tubie Pads over the next few weeks:

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of each maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week’s feature is on Dana from Turkey Tot Customs!  She is based in sunny Florida!  I have talked so much with this sweet gal, and she is a pure joy!  When I reached out to her about this project, she was so excited, immediately asked what I loved, then made an absolutely perfect set for me!  I told her “florals, vintage patterns (gingham, stripes, etc.) and humorous novelty prints.”  I’d say she nailed it!  Look how cute!IMG_4583 Continue reading “Tubie Pad Feature : Turkey Tot Customs”

Couch Potato Poem

My church does this really fabulous thing every summer where we celebrate the ordinary time between the big holidays. There really isn’t a lot that happens through the church calendar between Easter and Christmas, and we recognize that lots of our lives are spent in this ordinary-ness. So we do things differently, and usually spend time getting to know one another better.

A couple years ago during Ordinary Time, each Sunday started with a poem or writing written by someone in the church. All totally different topics, but everyday ordinary topics. I shared this poem, and haven’t shared it anywhere else but with the group that was there on that particular Sunday, so I’d like to share it with you here today.

Some things have changed, but the ultimate message remains. I’d love for you to soak in some couch potato-ness after reading this and remember all the things your body does for you!

Couch Potato

Looking at me right now, you might not be able to see that the simple things like consuming enough calories to survive, or taking a shower are difficult for me.

You might not know that I have to put a weird rubbery sleeve over my arm before showering in order to keep my PICC safe from water.

Since it is my lifeline, the way I receive nutrition, I wouldn’t want it to get infected with scary water germs.

You might not even be able to tell that medical tape is a part of my daily wardrobe, or that I have two feeding tubes that I like to call my stomach piercings.

And that’s all okay.

Because these things are hidden.

But do you know what else is hidden, aside from our different hidden struggles and limitations?

Just how much LIVING our bodies are doing.

I love how Christy Beam, author of Miracles from Heaven, put it, our bodies are “like an orchestra with all the individual instruments playing together in perfect tune.”

Now, maybe my violin section is a little off.

And maybe your trumpets aren’t playing quite loud enough, or your sax player is just getting into their own groove while you have no say over what they are doing.

But let’s just take a moment to think about all of the things our bodies are doing for us right now.

Hearts pump-pump-pumping.

Lungs breathing. In, out, in, out.

Blood cells acting as a transit system and getting oxygen where it needs to go. Such busy streets.

Guts churning. Gurgling.

Eyelids kissing one another as they blink blink blink.

All the while, you’re just simply sitting.

It’s truly beautiful.

We all go through life thinking, oh I’ve got to get this done, I’ve got to do that, say this, go here, be there at 7:37, constantly going.

But we already are constantly going.

Even in just simply sitting.

And sometimes it is perfectly okay to be a pretty, or handsome, couch potato.