Tubie Pad Feature : Turkey Tot Customs

With Carrie0762WebI’ve been working to put together a guide to Tubie Pads!  After years of feeling lost in the Tubie Pad world, I finally decided to jump in and bring you along with me!  I’ve gathered pads from several makers.  I’ll be sharing several things about each maker’s Tubie Pads over the next few weeks:

  • My personal thoughts on the maker’s Tubie Pads.
  • A bit of each maker’s story.
  • The materials they use and special features that sets each of them apart to help you find the right fit for you.
  • Lots of photos to hopefully help you get a full picture of what you are purchasing (on a human, front, back, etc.)
  • Price and where to find the Tubie Pads.
  • Lots of other nuggets of info depending on what each maker chooses to share!

This week’s feature is on Dana from Turkey Tot Customs!  She is based in sunny Florida!  I have talked so much with this sweet gal, and she is a pure joy!  When I reached out to her about this project, she was so excited, immediately asked what I loved, then made an absolutely perfect set for me!  I told her “florals, vintage patterns (gingham, stripes, etc.) and humorous novelty prints.”  I’d say she nailed it!  Look how cute!IMG_4583 Continue reading “Tubie Pad Feature : Turkey Tot Customs”

SwabCap Love & Ghost Hunting in Eureka

I feel like I owe my dear friend SwabCaps a huge thanks for helping to keep me central line infection free for the past five years (knock on wood)!  Don’t get me wrong, Sawbcaps aren’t a 100% infection blocker.  They do a pretty fabulous job though!

These sweet little orange nuggets are pure gold to me.  Lots of you might know about them, but for those who don’t, SwabCaps are Skittle sized rubbery-plastic caps that have an alcohol saturated pad inside that you put on the end of a central line or IV when it’s not in use.  You might also know a similar product called a Curos cap, a very similar product, but it’s a harder plastic that is bright green.Swab Caps06446Web Continue reading “SwabCap Love & Ghost Hunting in Eureka”

Choices : TPN Infusion Pharmacies

Hi there!

I hope you are doing great! Staying hydrated, out of the hospital, having fun and such!

It’s been a hot minute since I started a series called Choices, but I’d really like to jump back into that!  Plus, I’ve still got about a million photos I took at the grocery store because where else can you get perfect images that demonstrate the zillion choices we have in our lives?

In my first post, I talked on some tips and questions I ask myself when I’m looking at the doctors in my life.  Now I’d like to take a look at the tips and questions I like to ask myself when I’m choosing the company who mixes and delivers my TPN and supplies.

Choices _ TPN Infusion Pharmacy

Continue reading “Choices : TPN Infusion Pharmacies”

My 15 Reasons to go to the Oley Conference

Are you familiar with the Oley Foundation?  If not, and you rely on nutrition support in any way, they’re a great organization to get to know. I love the way they state who they are on their website, “…the Oley Foundation is a national, independent, non-profit 501(c)(3) organization that strives to enrich the lives of patients dependent on home intravenous nutrition (parenteral) and tube feeding (enteral) through education, advocacy, and networking.”  Learn more about Oley here.

They put on several conferences throughout the year, but their big annual one is the hot topic for discussion today.  While I’ve only been to one conference in 2016, it was absolutely life changing and I cannot wait for this summer’s conference in Memphis, Tennessee.  Here are my top fifteen reasons you should go to the Oley Annual Conference this June.
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Choices : Doctors

Who’s ready for a new series of posts?

Great, me too!

Over the next few weeks I’m going to share about the many choices that come with being chronically ill and some more specific to those of us on TPN and/or tube feeds.

My friend Joey, the manager at our local grocery store, gave me permission to take photos in his store.  I’ve had so much fun taking photos for my blog, and when it came to the photos to illustrate “choices,” what better place than the grocery store?  There are SO many options.  So although they don’t relate directly, I think the message is clear, endless choices!

Choices01067Web
Who knew there were so many types of canned tomatoes?

Why don’t we just start big today and talk about the choices that come with choosing our doctors?  Here are a few of the questions I find me asking myself to make sure I’m getting the best care possible. Continue reading “Choices : Doctors”