My Story Part Eight: The one where I find art and graduate

Welcome back!

My Story Part Eight 9

Let’s hop back into our story in May of 2010 with a huge update that I hadn’t been in the hospital since November of 2008!  That’s a really long stretch of time for me.  Of course, I still had the never-ending symptoms and missed a ton of school.  But I was learning what foods would work, how to more efficiently distribute my energy so that I didn’t wear myself out and keeping that straight ‘A’ student life alive.  All of this while managing my home health care visits, ordering TPN supplies weekly, keeping up with doctor appointments and doing my TPN set ups.

My Story Part Eight 2

Looking back, it’s pretty impressive that I was able to keep up with all of these things (mind you, I’d been doing this since day one of TPN when I was thirteen).  While some people would question why I was put in charge of everything, I’m really glad that my parents chose to give me these responsibilities because it wasn’t so mind boggling and terrifying when I got out on my own.  I knew my stuff and was confident in my knowledge and abilities.

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My Story Part Seven: The one where I moved a lot.

Welcome back!  I tried so darn hard to get some photo gems for this post. But during a time of Myspace and Photobucket, it was a huge struggle! Oh well! And after lots of medical talk, it’s time to do some housekeeping on what was happening in my home and social life the next couple of years.

My Story Part Five and Six 2

My family moved from an apartment into a new house the summer after my seventh grade year.  A few months after the move, my parents split up and so did my family.  I went to live with my mom about 40 miles away from McKinney in the Denton area at my aunt’s house and my little brother stayed in McKinney with my dad.

While this was very unfortunate and stressful, the change in schools in the middle of my eighth grade year helped me find some really great new friends.  I absolutely loved going to school in Lake Dallas.  I was only there for a semester, but while I was there I met one of my lifelong friends, Jordan.

My Story Part Seven Jo

We spent nearly all of our free time together and I wouldn’t have had it any other way!  We even survived a weekend together while Jordan had to take care of one of those fake babies for school – one of those that cries constantly and you can’t get away from because you have the bracelet that is the only thing that makes it happy.  We also spent a ton of time working on our Myspace profiles, which is absolutely ridiculous in hindsight.  In addition to that, we took tons of photos that were solely for Myspace as well.  Oh, and we picked the perfect songs for our Myspace.  You know all the important things!

Continue reading “My Story Part Seven: The one where I moved a lot.”

My Story Part Six: The one where I finally gained some weight!

Hey! Welcome back! Several concerned friends of mine have asked if I intend on continuing to put out new content here every single day. There’s truly no way I could keep up with that flow. Honestly, I’m trying to get my story churned out as quickly as possible. My ultimate goal is to get to sharing content full of tips and tricks that I’ve learned through the years that will hopefully help those of you who deal with similar struggles. I am so excited to get to that point, so I’m working as hard as I can to get there quickly! So let’s get to it!

So now I’m NPO, have my NG tube and I’m getting fluids.  Then, they start talking about other new things – how’s this girl going to get her nutrition because it’s pretty clear that food isn’t working out for her?  Unfortunately, I was not invited to a lot of these talks.  So I’m not really sure how they arrived at the conclusion to go straight to TPN, which is stands for Total Parenteral Nutrition, essentially meaning IV nutrition.

TPN Cartoon
I do not own the rights to this image, and cannot find who does. Would love to give them credit for this amazing illustration!

In order to administer TPN, you must first have central access.  A normal IV is peripheral access, basically meaning it goes into the branches of your circulatory system.  While central access, which could include ports, PICC lines, Hickman and Groshong lines, go directly into the large veins or trunk of your circulatory system.

Continue reading “My Story Part Six: The one where I finally gained some weight!”