I’m going to start this story with a little flashback to September of 2014 when I was in the hospital getting my G-tube placed. Anthony had driven down from Fayetteville to Dallas to stay with me through some of my days in the hospital, and it was so kind of him to do that. It was especially kind of him to deal with a girl who was on so many medications that she didn’t even know what was happening most of the time. He really liked me I guess!
Anyway, long story short, one day not too long after receiving pain medication, I started crying because I had something I wanted to tell him. After acting like a weirdo for a few minutes, I just blurted out, “I LOVE YOU OKAY!”
That’s the end of that part of the story. It’s also good to note that this was my last long hospital stay until this engagement story begins.
Sixteen months passed (RECORD!) I had moved to Fayetteville with Anthony, and things had continued to progress between the two of us.
Oh golly! Some folks get instant nerves just thinking about talking about medical or insurance issues on the phone and opening “scary” mail. Today, I’ll share some insights on what it’s like to be chronically ill and dealing with the “paperwork” side of things. Then, I’ll share some tips that help me handle the stress of it.
I generally enjoy getting phone calls and don’t fear them. But, when it comes to medical calls, they are certainly not at the top of my “favorites list” and having to deal with them can cause my anxiety to ratchet up. It can be extremely frustrating to be unable to talk directly to my doctor about something scary my body is doing or trying to orchestrate a procedure that the scheduler is having a difficult time understanding. On top of my list of ‘faves’ (sarcasm intended) is insurance calls! They each have their different levels of stress and they are all on the opposite of fun spectrum.
“Scary” mail is something that gets me all jumpy! What do I mean by “scary” mail? You know the letters I’m talking about – the ones with the logo and return address that instantly make you anxious and wonder what terms the insurance company is changing or how much you owe a doctor’s office. That’s the “scary” mail I’m talking about and it usually creates a list of phone calls that have to be made!
My hospital visits are usually quite lengthly and full of waiting on my guts to work. I’m sure some of these ideas won’t work for all circumstances, but perhaps a couple will make you think, “Man! That’s definitely going along for my next trip!” My hope is that some of these things will help make your hospital stays lots comfier and feel a little bit more like home. Some of them might even seem ridiculous, but when you’re feeling crummy and unable to even be in your own home, you’ve got to do what you’ve got to do!
Good bath towel — Because those hospital towels don’t cover a fly, and they’re rough as heck. Showering isn’t something that I get to do all that often when I’m in the hospital. But when the day rolls around that I get to, I want a GOOD shower. That also involves feeling great after the shower! A soft plushy towel is vital to making your showers at the hospital feel a little more like home!
Hairdryer — Because you’re going to be cold when you get out of said shower, and wet hair doesn’t help when you’re cold! Burr! Some hospitals have a hairdryer or two on each floor, so it’s always worth asking for one if you forget. But I never count on that being the case!
Hey you guys! Anthony and I were invited to go out to Sacramento to attend a focus group and a half day seminar, we had such a fabulous time! I’m so excited to share our experience here with you today!
The time we spent getting there and getting home held some of the most intense action (not in a great way, ha!) so I’ll start with a (now) funny tale from our journey out there!
So on our way out on Thursday, we were going to be on a small plane on the first leg of our flight. You know how that goes, right? They always call out that they’ll, “check your bag at no charge to get to your final destination.” I always jump at this opportunity, because I HATE having to tote my bag around. So we went ahead and took them up to the desk. The gal asked quickly, ‘any blah, blah, lithium batteries, blah, blahs in either of these?’ My blah’s are not used in a mocking notion, just to emphasize the size of the list!
I ran through my bag in my brain, and didn’t believe I had any guns or any of the other items, so off they went!
Well surprise, this was the first time I’d traveled with my camera. On the plane while we were in the air, I leaned over to Anthony and asked, “Um babe, are camera batteries lithium batteries?” Continue reading “Good ol’ Sacramento”→
Hi everyone! This is the last post of this “My Story” series. Thank you all for your support in my telling of this story, it means the world to me. I know it’s hard with this being a chronological story and a blog posting it backwards. But I’ve made a list of links on this page and this page that will help guide you through them in the correct order!
I am so excited to get to this part of the story! This is where things finally start to look up and it makes me so happy.
Just a recap, I’m still hanging out in the hospital from the same visit as the end of Part 17!
After being in and out of the hospital and getting tube after tube shoved down my nose to drain my stomach, we all knew something had to give. One morning, my doctor came in and asked what I thought about having a draining G-tube placed. She knew that had been the initial plan at Mayo Clinic and that it didn’t end up working out due to my anatomy, but she was thinking about asking a surgeon if he would be so kind to place it for me. Continue reading “My Story Part Eighteen: The one where I get my life changing G-tube”→