Oh golly! Some folks get instant nerves just thinking about talking about medical or insurance issues on the phone and opening “scary” mail. Today, I’ll share some insights on what it’s like to be chronically ill and dealing with the “paperwork” side of things. Then, I’ll share some tips that help me handle the stress of it.
I generally enjoy getting phone calls and don’t fear them. But, when it comes to medical calls, they are certainly not at the top of my “favorites list” and having to deal with them can cause my anxiety to ratchet up. It can be extremely frustrating to be unable to talk directly to my doctor about something scary my body is doing or trying to orchestrate a procedure that the scheduler is having a difficult time understanding. On top of my list of ‘faves’ (sarcasm intended) is insurance calls! They each have their different levels of stress and they are all on the opposite of fun spectrum.
“Scary” mail is something that gets me all jumpy! What do I mean by “scary” mail? You know the letters I’m talking about – the ones with the logo and return address that instantly make you anxious and wonder what terms the insurance company is changing or how much you owe a doctor’s office. That’s the “scary” mail I’m talking about and it usually creates a list of phone calls that have to be made!
My hospital visits are usually quite lengthly and full of waiting on my guts to work. I’m sure some of these ideas won’t work for all circumstances, but perhaps a couple will make you think, “Man! That’s definitely going along for my next trip!” My hope is that some of these things will help make your hospital stays lots comfier and feel a little bit more like home. Some of them might even seem ridiculous, but when you’re feeling crummy and unable to even be in your own home, you’ve got to do what you’ve got to do!
Good bath towel — Because those hospital towels don’t cover a fly, and they’re rough as heck. Showering isn’t something that I get to do all that often when I’m in the hospital. But when the day rolls around that I get to, I want a GOOD shower. That also involves feeling great after the shower! A soft plushy towel is vital to making your showers at the hospital feel a little more like home!
Hairdryer — Because you’re going to be cold when you get out of said shower, and wet hair doesn’t help when you’re cold! Burr! Some hospitals have a hairdryer or two on each floor, so it’s always worth asking for one if you forget. But I never count on that being the case!
Hi everyone! This is the last post of this “My Story” series. Thank you all for your support in my telling of this story, it means the world to me. I know it’s hard with this being a chronological story and a blog posting it backwards. But I’ve made a list of links on this page and this page that will help guide you through them in the correct order!
I am so excited to get to this part of the story! This is where things finally start to look up and it makes me so happy.
Just a recap, I’m still hanging out in the hospital from the same visit as the end of Part 17!
After being in and out of the hospital and getting tube after tube shoved down my nose to drain my stomach, we all knew something had to give. One morning, my doctor came in and asked what I thought about having a draining G-tube placed. She knew that had been the initial plan at Mayo Clinic and that it didn’t end up working out due to my anatomy, but she was thinking about asking a surgeon if he would be so kind to place it for me. Continue reading “My Story Part Eighteen: The one where I get my life changing G-tube”→
Welcome back! This is the second to last part of this story. Thanks so much for sticking around for it! I’m curious, what would you like to see me write next? While I have ideas, I am ultimately here in hopes of helping others. Are you currently having issues with how to tape your feeding tube and looking for a possible new way? Are you scheduled for a procedure in the hospital and want a list of ideas for things to take with you to make it feel more like home? Or maybe you aren’t a patient and have a question about something I’ve already mentioned here and would like for me to elaborate on it? I’d love to hear from you!
Let’s jump back in!
The second trip to Mayo Clinic was just as busy as the first! There were lots of lab draws and running around to see various doctors, but Aunt Retta and I had fun with it!
Welcome back! Alright, so the J-tube is placed! What else could ever go wrong?
While getting used to my new normal with my J-tube, I had a lot of trouble. It was great in the sense that it helped my tummy stay a little flatter than it had been and it made it to where I was able to eat a pretty full liquid and soft food diet without too much trouble. But it was so hard to learn how to tape it just right so it didn’t hurt and to find cute clothes that were comfortable and didn’t make it obvious that it was there.